ADPKD - What Your Patients Want You to Know

Although autosomal dominant polycystic kidney disease (ADPKD) is the most common genetic disorder leading to end-stage renal disease (ESRD), significant gaps exist in physicians’ knowledge of the disease and, consequently, in their ability to manage patients with ADPKD in their practice.¹ Indeed, an international panel of experts convened to identify gaps and questions affecting clinicians’ approach to the condition detailed 48 separate topics that require attention to improve the care of patients with ADPKD.¹

Effectively addressing those gaps encompasses educating primary care clinicians, nephrologists, and genetic counselors, each of whom plays a key role in the care of patients with ADPKD.

“There is ample evidence to suggest that primary care providers (PCPs) do not have adequate training and knowledge about ADPKD, and not all newly diagnosed patients are referred automatically to a nephrologist,” according to the international experts participating in the Kidney Disease—Improving Global Outcomes (KDIGO) Controversies Conference on ADPKD.¹ This is a significant shortcoming given that the condition increasingly is seen in the primary care setting, according to two nurse practitioners who note that PCPs “must be able to identify and effectively care for patients with this condition.²

Nephrologists also have significant knowledge and practice gaps that must be addressed. “Diagnosis, evaluation, prevention, and treatment vary widely, and there are no broadly accepted practice guidelines,” according to the KDIGO panelists.¹ They added, “Many nephrologists lack time and ability to explain the diagnosis and all of its complex implications” to patients.¹

Similarly, the panelists noted that, “With increasing availability of genetic testing and clinical relevance of such testing for prognosis, physicians and [genetic] counselors will need to be trained to communicate the potential benefits and limitations of these analyses.¹

This continuing medical education activity was developed to address those needs.

1. Chapman AB, Devuyst O, Eckardt K-U, et al. Autosomal dominant polycystic kidney disease (ADPKD): executive summary from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference. Kidney Int. 2015;88:17-27.

2. Yrad ALS, Humphreys C. Primary care perspectives in autosomal dominant polycystic kidney disease. Nurse Pract. 2017;42:8-11.

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This activity is supported by an independent educational grant from Otsuka America Pharmaceutical, Inc.

 

Term of Offering

This activity was released on 12/31/18 and is valid for one year. Requests for credit must be made no later than 12/31/19.

Target Audience

The educational design of this activity addresses the needs of nephrology and primary care providers involved in the treatment of patients with ADPKD.

Physician Accreditation Statement

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Global Education Group (Global) and Global Academy for Medical Education. Global is accredited by the ACCME to provide continuing medical education for physicians.

Physician Credit Designation

Global Education Group designates this enduring material for a maximum of 0.5 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nursing Continuing Education

Global Education Group is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

This educational activity for 0.5 contact hours is provided by Global Education Group. Nurses should claim only the credit commensurate with the extent of their participation in the activity.

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In order to receive credit for this activity, the participant must read the activity information, review the activity in its entirety, and complete the online post-test and evaluation. Upon completing this activity as designed and achieving a passing score on the post-test, you will be directed to a web page that will allow you to receive your certificate of credit via e-mail or you may print it out at that time.

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There is no fee for this educational activity.

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Disclaimer

Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed in this activity should not be used by clinicians without evaluation of patient conditions and possible contraindications on dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.

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